dementia with lewy bodies

Dementia With Lewy Bodies Guide

Lewy Body Dementia

Stellar Care is dedicated to ensuring your loved one with Dementia with Lewy Bodies maintains a life of dignity, purpose, and receives the compassionate care they deserve. If someone you know is showing signs of this condition, you will want to educate yourself about this disease. This knowledge will empower you to support them and make a plan for their ongoing care.

What is Dementia with Lewy Bodies?

Dementia with Lewy bodies is a progressive neurodegenerative disorder that primarily affects cognitive function and movement. It’s characterized by the presence of abnormal protein deposits called Lewy bodies in certain areas of the brain. Lewy bodies contain aggregates of alpha-synuclein protein, which disrupt normal brain function.Lewy Body Dementia is an umbrella term that encompasses both Dementia with Lewy Bodies and Parkinson’s Disease Dementia. Dementia with Lewy bodies shares similarities with both Parkinson’s disease and Alzheimer’s disease, and its symptoms can overlap with these conditions.

Symptoms of Lewy Body Dementia

Fluctuating Cognitive Function: People with Dementia with Lewy bodies often experience rapid and unpredictable changes in cognitive function, like issues with attention, alertness, and memory. These fluctuations can occur within minutes to hours and can make daily tasks challenging.

  • Visual Hallucinations: Visual hallucinations in the elderly are a hallmark of those who  suffer from Dementia with Lewy bodies and can involve seeing things that are not actually present. These hallucinations may be detailed and vivid.

Parkinsonism: Many people with Dementia with Lewy bodies develop motor symptoms  similar to Parkinson’s disease, including tremors, stiffness, and difficulties with balance and coordination.

REM Sleep Behavior Disorder: A significant number of people with Dementia with Lewy bodies experience REM sleep behavior disorder, which involves acting out vivid dreams during sleep, which often results in physical movement during sleep.

Sensitivity to Medications: People with Dementia with Lewy bodies can have adverse reactions to some medications, like antipsychotic drugs, which can worsen their symptoms.

 Memory and Cognitive Impairment: Cognitive decline is a key feature of Lewy Body Dementia. Memory problems, difficulties with problem-solving, and language are present and resemble features seen in Alzheimer’s disease.

Affective Symptoms: Mood changes are prevalent in Lewy Body Dementia, including depression, anxiety, and irritability..

Autonomic Dysfunction: Autonomic nervous system dysfunction can lead to symptoms such as changes in blood pressure, heart rate variability, and digestion. This can result in dizziness, falls, constipation, and other issues.

Visual-Spatial Difficulties: Problems with judging distances, depth perception, and recognizing objects can occur.

Loss of Insight: People with Lewy Body Dementia might not fully recognize the extent of their cognitive deficits, which can impact their awareness of their condition.

How to get a Dementia with Lewy Bodies diagnosis

Getting a Dementia with Lewy Bodies diagnosis can be challenging due to the overlap of symptoms with other disorders, such as Alzheimer’s disease and Parkinson’s disease. A definitive diagnosis is often made based on a combination of clinical symptoms, medical history, and neuroimaging studies.

What is the cause of Dementia with Lewy Bodies?

The exact cause of Dementia with Lewy Bodies is not fully understood, but it’s believed that it stems from the accumulation of abnormal protein deposits known as Lewy bodies in the brain, primarily composed of alpha-synuclein. These protein deposits disrupt brain cell function, causing cognitive, motor, and psychiatric symptoms. 

Genetic and environmental factors, though not directly inherited, might contribute to the development of this disease. Rare genetic mutations slightly elevate risk. Environmental factors, toxins, or substances could also trigger alpha-synuclein accumulation. The intricate interplay of genetics, environment, and molecules underlies neurodegenerative disorders like Dementia with Lewy Bodies. 

How does Dementia with Lewy Bodies affect quality of life?

Dementia with Lewy Bodies significantly impacts an individual’s quality of life by causing a range of cognitive, motor, and psychiatric symptoms. Memory loss, confusion, and difficulties in reasoning can lead to challenges in daily activities and relationships for those with Dementia with Lewy Bodies. Motor symptoms like tremors, stiffness, and gait problems affect mobility and independence. Visual hallucinations, mood fluctuations, and sleep disturbances contribute to emotional distress. These combined symptoms can cause frustration, anxiety, and depression, affecting overall well-being and disrupting the ability to engage in activities that were once enjoyed. The unpredictable nature of symptoms from this disease and their varying intensity compounds the challenges, requiring comprehensive support and care to manage and maintain the best possible quality of life.

How long can you live with Lewy Body Dementia?

The progression and life expectancy of Lewy body dementia (including Dementia with Lewy Bodies and Parkinson’s disease dementia) vary widely based on overall health, subtype, age at onset, and quality of care. This progressive neurodegenerative disorder worsens cognitive, motor, and psychiatric functions over time. On average, survival post-symptom onset ranges from 5 to 8 years, though durations vary. The disease’s course can be unpredictable, with some experiencing slower progression and others deteriorating rapidly.

Dementia with Lewy Bodies: Changes in the brain

Lewy body dementia is characterized by the presence of abnormal protein deposits called Lewy bodies in the brain, which lead to a range of cognitive, motor, and psychiatric symptoms. Lewy bodies contain aggregates of alpha-synuclein protein, which disrupt normal brain function.These changes particularly affect areas of the brain responsible for memory, thinking, movement control, and emotional regulation.

Is Dementia with Lewy Bodies reversible?

Dementia with Lewy Bodies is a progressive neurodegenerative disorder, and at present, it is not considered reversible. Once the symptoms of Dementia with Lewy Bodies start to manifest, they tend to worsen over time. While there is no cure for Dementia with Lewy Bodies, early diagnosis and appropriate management can help improve the quality of life for individuals with the condition and manage some of the symptoms. Medications may be prescribed to address specific symptoms such as cognitive decline, movement problems, and mood disturbances. Non-pharmacological interventions, including physical therapy, occupational therapy, and support from caregivers, can also play a significant role in managing the challenges posed by Dementia with Lewy Bodies.

Ongoing research is focused on unraveling these mechanisms to better understand the underlying causes of Dementia with Lewy Bodies and to develop potential treatments or interventions.

Treatment for Lewy Body Dementia

Because there is currently no cure for Lewy Body Dementia, treatment focuses on managing symptoms and optimizing the individual’s quality of life. Early diagnosis, appropriate medical and dementia care, supportive interventions, and a strong support network can all contribute to better outcomes and an improved quality of life for both individuals with Lewy Body Dementia and their caregivers.

How to help someone with Lewy Body Dementia

The best way help someone with Lewy Body Dementia is to gain a better understanding of the disease and do the following: 

  • – Ensure regular medical care and medication management.
  • – Establish a consistent daily routine.
  • – Use clear communication and gestures.
  • – Ensure a safe environment with good lighting.
  • – Provide a balanced diet and encourage hydration.
  • – Promote gentle exercises and social interaction.
  • – Handle hallucinations calmly and distract if needed.
  • – Establish a sleep routine and address sleep disturbances.
  • – Seek caregiver support and professional assistance.
  • – Practice patience, empathy, and understanding.


If someone you love is having symptoms of Dementia with Lewy Bodies or Parkinson’s Disease Dementia consult with a healthcare professional who specializes in neurodegenerative disorders for proper evaluation, diagnosis, and management. 

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